Yesterday we began our walk praying and walking for "Invisible Kansans." A group of folks who are on waiting list to receive basic services such as rehabilitation, medicine and transportation. They are people well like us. Our son Jeremiah was an "invisible Kansan" for more than 5 years. We waited until either someone died, or the state legislature agreed to spend more money so our son could have services. We now have access to health care for him, as well as someone to come to our home and care for him.
Those of us who have a special person in our lives require to give a great deal of our time. Now I am not complaining about this as do most of the parents of special kids. But the truth is if we don't have help from time to time we will die sooner than the rest of you due to the amount of stress and constant requirements of our time. Take an "average" month for us. We get little sleep because of Jeremiah's seizure activities, we must watch him 24x7. He requires help eating, bathing, dressing and basically living each day. Again, I am not complaining but the truth is the care required for a special child is more than I or any parent can handle 24x7 365 days a year. When our son finally did get removed off the list it was when my spouse and I were sick from the day to day stress on our bodies of caring for our beautiful son.
I implore you to help other invisible Kansans today by visiting the website (on the right of the blog) and calling our state legislature to approve the additional money that is needed. When you go to the website you can read more stories about other Kansans. Perhaps you can even visit a special person in your community help them have a voice and know that they are a valuable person.
peace be with you!
Those of us who have a special person in our lives require to give a great deal of our time. Now I am not complaining about this as do most of the parents of special kids. But the truth is if we don't have help from time to time we will die sooner than the rest of you due to the amount of stress and constant requirements of our time. Take an "average" month for us. We get little sleep because of Jeremiah's seizure activities, we must watch him 24x7. He requires help eating, bathing, dressing and basically living each day. Again, I am not complaining but the truth is the care required for a special child is more than I or any parent can handle 24x7 365 days a year. When our son finally did get removed off the list it was when my spouse and I were sick from the day to day stress on our bodies of caring for our beautiful son.
I implore you to help other invisible Kansans today by visiting the website (on the right of the blog) and calling our state legislature to approve the additional money that is needed. When you go to the website you can read more stories about other Kansans. Perhaps you can even visit a special person in your community help them have a voice and know that they are a valuable person.
peace be with you!
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